we are


ability | advocacy | awareness

– 1989 –

The Down Syndrome Family Support and Advocacy Group (DSFSAG) also referred to as Michiana Down Syndrome is a non-for profit 501c3 organization. Our Board is a 100% volunteer and we are proud to serve the St.  Joseph, Marshall, LaPorte, Starke and  Elkhart counties in Indiana and Cass, St. Joseph and Berrien counties in Michigan.

The DSFSAG was started by parents in the 1980’s. Over the years we have grown from just a few families who held family parties a few times a year to an extremely active group with over 200 families and many programs/events throughout the year.

Not That Rare

More than one third of all Americans know someone with Down Syndrome.



Working to foster a community of acceptance and understanding while promoting inclusion, education, and opportunities for individuals with Down syndrome.

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Living Longer

The life expectancy of a person with Down Syndrome has risen from 25 years in 1983 to 60 in 2013.  



As advocates we are honored to be a voice for people with Down syndrome.  It is our desire to support and defend the value of their lives and to educate others on the unique needs and abilities of these extraordinary people.


Speak Up


There are currently 400,000 individuals diagnosed with Down Syndrome in the United States. With the increase in life expectancy this number will only grow.



People with Down syndrome have a broad range of abilities.  It is our desire to celebrate their accomplishments and foster an environment where each individual can reach their greatest potential as they seek to fulfill their aspirations. 


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