Adults with Down Syndrome
The Mission Project” enables capable adults with developmental or cognitive disabilities to live independently and safely in community with minimal support.
“Health is more than the absence of disease. Health is a sense of physical, mental and spiritual well being. It is a process that involves health promotion, health monitoring, and early intervention for health problems. Understanding what is typical or in the normal range for a person with Down syndrome is essential for providing health care.” From Health Issues for Adults with Down Syndrome
The occurrence of Alzheimer’s disease among persons with Down syndrome has caused a great deal of concern for families and care providers of adults with Down syndrome. As discussed by…others, research has found that all adults with Down syndrome over the age of 40 develop plaques and tangles in their brains similar to those seen in persons with Alzheimer’s disease. Based on this information, many parents and professionals often conclude that all persons with Down syndrome will eventually develop Alzheimer’s disease. However, this conclusion is primarily based on autopsy data without a similar evaluation of premorbid clinical information. Many parent organizations are concerned that such conclusions may have deleterious effects if it is believed that all adults with Down syndrome eventually will be affected by Alzheimer’s disease.
This article discusses the concerns of the parents, describes the development of a multidisciplinary clinic to address their concerns, and offer information on how clinic staff evaluates persons with Down syndrome who are declining in function and potentially developing Alzheimer’s disease. Recommendations for the prescriptive care of persons who have been diagnosed with Alzheimer’s disease are also discussed. From Adults with Down Syndrome: A Specialty Clinic Perspective
Materials from our library located at the Michiana Down Syndrome Resource Center at Town & Country Shopping Center, Mishawaka. (all of our library materials have been purchased with funds donated during our Awareness Walks)
*Materials in our library located at the Michiana Down Syndrome Resource Center
- Mental Wellness in Adults with Down Syndrome
- Teaching Children with Down Syndrome About Their Bodies, Boundaries, and Sexuality
- Strong Love (DVD)
- Crossing Tahoe (DVD)
- Grown Man Now
- Adults with Down Syndrome
last updated 1/3/2016 sp